Family Caregivers Unite!
VoiceAmerica
Family caregivers are the people who provide care to partners, parents, children, brothers, sisters, cousins, friends, neighbors and even co-workers. They are the people who provide care when everyone else has gone home. They are the people who organize the functioning of the home for the person with special needs, and for the family as a whole. They are the coordinators of care, the managers of appointments, the preventers of loneliness, and the makers of decisions even to the point of Power of Attorney. And they are so often people who themselves are burdened with their own health challenges and who may be in only marginally better health than the persons to whom they are providing family caregiving.
Location:
Oakville, ON
Networks:
VoiceAmerica
Description:
Family caregivers are the people who provide care to partners, parents, children, brothers, sisters, cousins, friends, neighbors and even co-workers. They are the people who provide care when everyone else has gone home. They are the people who organize the functioning of the home for the person with special needs, and for the family as a whole. They are the coordinators of care, the managers of appointments, the preventers of loneliness, and the makers of decisions even to the point of Power of Attorney. And they are so often people who themselves are burdened with their own health challenges and who may be in only marginally better health than the persons to whom they are providing family caregiving.
Twitter:
@GordonAtherley
Language:
English
Email:
DocG@MyMonAmi.com
Episodes
Encore: Services for and Needs of FASD Children
4/12/2016
Angela Geddes is the Assessment Coordinator at the FASD London Region Assessment Clinic, http://www.fasd-londonregion.com/. Darlene --. is an Early Childhood Educator and Homeschooling Mom of two who’s worked with children for the past 24 years in formal and home childcare settings. They talk about their lives, careers, experience with FASD children, work and responsibilities. They highlight the challenges that FASD creates for children, for their families and their family caregivers, and...
Duration:00:57:18
Encore: Law and Lore of Autonomy and Mental Health Disabilities
4/5/2016
Marni Soupcoff, a lawyer, is a newspaper columnist and Executive Director of the Canadian Constitution Foundation, and previously served the Institute for Justice. She describes her work and experience with family caregiving. She explains autonomy and highlights the challenges it creates for families and family caregivers caring for family members with mental illness or brain damage who may be unable to make decisions in their own best interests. She discusses the challenges created for...
Duration:00:53:47
Bullying People living with Mental Health Disabilities
3/29/2016
Dr. Gordon Atherley, docg@familycaregiversunite.org, holds the British equivalents of the North American MD and PhD degrees, and LLD, Honoris Causa. He highlights his own experience of bullying within a Canadian organization focused on mental illness. The bullying caused harm and loss to many people who were associated with the organization, who depended on it, or who trusted it. He believes that the bullying reflected Narcissistic personality disorder, as defined by various expert...
Duration:00:55:54
A Family Experience of being Bullied
3/22/2016
As Chief Advocate at K&A Inc., http://kealeyandassociates.com/, Marc Kealey is a leading voice for transformation in health care. He talks about his family, the experience of being bullied, the ways the bullying occurred, and its effects on his family. He says as much as he can about the apparent motives of the bullies. He discusses bullying, especially as it affects families, in healthcare, politics, and internet safety, sectors in which he has wide professional experience. For these...
Duration:00:54:57
Bullying of People living with Mental Health Challenges
3/15/2016
Craig Lewis is a Certified Peer Specialist living in Massachusetts, http://www.betterdaysrecovery.com/. He’s struggled immensely throughout his life, but he’s successfully transformed it into a life of wellness. He talks about his life, career as author of ‘Better Days – A Mental Health Recovery Workbook', and his personal experience of being bullied. Drawing on his experience and of others he discusses the forms that bullying takes and how bullies bully. He talks about resisting bullying,...
Duration:00:55:52
Divorce when Children live with Disabilities
3/8/2016
Joryn Jenkins is a trial attorney with 36 years of courtroom experience, now in private practice at Open Palm Law, http://openpalmlaw.com/, in Tampa, Florida. She discusses her career and her law firm ‘Open Palm Law’. She explains Collaborative Law and highlights its principles. She talks about the experiences of divorcing couples, their children who are living with persistent disabilities, and their families. She explains the ways in which collaborative divorce works to help manage or...
Duration:00:56:07
Gene Editing for Individuals and their Families and Family Caregivers
3/1/2016
Dr. Marcy Darnovsky is Executive Director of the Center for Genetics and Society, http://www.geneticsandsociety.org/. She describes her career and the Center’s work. She explains human gene editing, the ways it could be used for medical treatment and research, and the pros and cons. She explains germline gene modification and the Center’s position on its benefits and risks. She highlights policies on human germline modification in influential countries and identifies the main differences....
Duration:00:55:49
How Class Action Lawsuits are Organized
2/23/2016
Rob Gain, lawyer, joined Koskie Minsky’s Class Actions group, http://kmlaw.ca/lawyers/?practicearea=57, in 2014 after practicing at another leading class-action law firm. He describes his career and experience as a lawyer especially in class actions, and the work of the Class Actions group. He says what a class action and its stages are. He explains the things that lead to class actions, what these seek to achieve, the decisions expected from the Court, and the possible outcomes and...
Duration:00:55:32
Adoption Beyond Infancy
2/16/2016
Jane De Pauw lives in Sherwood Park, Alberta, Canada, with her husband and two children who were adopted through the Alberta foster care system. Sylvie Hebert was born in Buckingham, Quebec, Canada. She and her husband started their own family and then set up their own medical foster home. They explain the Adoption Society of Alberta, http://www.adoptionabi.com, and the support it provides for parents who have adopted children. They discuss the experience of adoptive parents. They highlight...
Duration:00:55:39
UnitedHealthcare Resources for Family Caregivers caring for Aging or Disabled Family Members
2/9/2016
Kirk Pion is Vice President of Design & Development for the UnitedHealthcare Innovation Centers of Excellence. Dr. Vidya Raman-Tangella, a physician, heads UnitedHealthcare’s Innovation Center of Excellence. They describe the company, UnitedHealthcare, http://www.uhc.com/, and explain their work in innovation. They discuss issues and challenges experienced in America by caregivers caring for aging or disabled family members, and say why UnitedHealthcare’s Solutions for Caregivers are needed....
Duration:00:55:48
Challenges for School Children of Fetal Alcohol Spectrum Disorders
2/2/2016
Mark Courtepatte is co-chair of the Hamilton and Area Parent and Caregiver FASD (Fetal Alcohol Spectrum Disorders) Support Group, http://www.hamiltonfasdsupport.ca/, and one of the organizing members of the Youth and Sibling FASD Support Group. He describes his work, the experiences of FASD that his work has created for him, and the Groups’ support that’s provided to school children, and their families and family caregivers. He discusses the challenges created by FASD for children beginning...
Duration:00:55:01
Memory Lane TV Therapeutics for Dementia
1/26/2016
lban Maino, who is based in Portland Maine, has 25 years of experience as a film director and producer. He refocused his expertise on dementia when he learned that his grandmother was diagnosed with Alzheimer’s disease. He talks about his career and says why the diagnosis of his grandmother’s Alzheimer’s disease caused him to change his career so decisively. He explains the ways in which he provides Memory Lane TV Therapeutics, http://memory-lane.tv/, for dementia. He discusses Memory Lane...
Duration:00:56:16
Discus Dementia Home Model of Care and Social Community
1/19/2016
Dr. Éthelle G. Lord, Founding President of the International Caregivers Association, www.icareassoc.com, discusses improvements she wants to see in dementia care, the main features of the Discus Dementia Home, and how it will help in bringing the improvements. She explains how the Discus Dementia Home Model of Care and Social Community supports individuals living with dementia, and their families and family caregivers. She talks about care partners and how are they trained to support the...
Duration:00:57:03
Therapeutic Jurisprudence - The Lawyer as Healer?
1/12/2016
Michael Crystal is a partner at the law firm of Spiteri & Ursulak LLP, where he currently leads the class action group, http://crystalcyrlaw.com/. He explains difficulties faced by lawyers when clients and third parties have needs beyond the scope of therapeutic jurisprudence, what he means by therapeutic jurisprudence and healer, and what attracts his interest. He explains with examples ways in which the role of healer can assist lawyers, and their clients and third parties who have mental...
Duration:00:55:58
Serious Mental Illnesses as Challenges for Police and People
1/5/2016
Dr. Terry Coleman was a police officer for nearly 40 years including ten years as a chief of police. Subsequently he was a Deputy Minister for the Saskatchewan provincial government with responsibility for policing and corrections. He describes his current work as a Public Safety Consultant, his research, and his career in policing and what he learned from it. He identifies what he sees as the most challenging of the challenges created by serious mental illnesses for police themselves, the...
Duration:00:55:00
Encore: Schizophrenia and Family Caregiving
12/29/2015
Chris Summerville is a director of the Mental Health Commission of Canada. Debbie Sirota is a single parent of Tamara, aged 24, who lives with schizophrenia. They discuss services for persons with schizophrenia and their family caregivers, identify challenges the services respond to, and explore experiences. They examine the role of the family caregiver in the various stages of schizophrenia. They discuss the ways in which family caregivers become eyes, ears and voice for the persons they...
Duration:00:57:05
How Tammy and Sherri Create Hope for People Living with Schizophrenia
12/22/2015
Tammy Lambert is diagnosed with schizoaffective disorder and is coping with delusional symptoms and mood instability. Sherri Matsumoto, who now lives with schizophrenia, was first diagnosed with mental illness as a teenager, but her first diagnosis was not schizophrenia. They highlight their own experiences of living with schizoaffective disorder and schizophrenia. They talk about their work creating hope for people living with schizoaffective disorder and schizophrenia. They discuss the...
Duration:00:54:18
Healing and Empowerment in Schizophrenia through Creative Endeavour
12/15/2015
Ernie Bart is a member of the Board of Artbeat Studio, http://artbeatstudio.ca/. Lucille Bart is Executive Director and co-founder with their son Nigel, diagnosed with schizophrenia at age 19. They describe their personal experiences as parents of a son living with schizophrenia. They explain Artbeat Studio’s work with various forms of art, and the work of their son as Studio Facilitator of Artbeat Studio. They identify what they see as the most challenging of the challenges faced by...
Duration:00:53:54
Autonomy for Persons with Psychosis-related Illnesses and their Family Caregivers
12/8/2015
Elyn R. Saks is Professor of Law, Psychology, and Psychiatry and the Behavioral Sciences at the University of Southern California Gould School of Law; Adjunct Professor of Psychiatry at the University of California, San Diego, School of Medicine among other appointments. Dr. Lisa Doupe is an MD and a Fellow of the American College of Occupational and Environmental Medicine. She is a General Practice Psychotherapist specialized in care of persons whose high-risk behaviors involve them with...
Duration:00:55:17
Listening, Empathizing, Agreeing, and Partnering in Schizophrenia
12/1/2015
Dr. Xavier Amador, the Founder of the LEAP Institute, is an internationally renowned clinical psychologist and leader in his field. He describes his research, personal life and professional experience. He explains LEAP (“Listen-Empathize-Agree-Partner”), its focus on relationships, and the purposes he saw for it. He discusses the challenges created by schizophrenia for individuals who live with it, for their families and family caregivers, and for providers of medical treatment for...
Duration:00:58:22